Consent to What?! Ethical and Policy Issues in Biospecimen Research
As part of the Quality Assurance and Education Program
(QAEP),
The Research Ethics Office is pleased to present our Semi-Annual
Lecture in Research Ethics:
Consent to What?! Ethical and Policy Issues in Biospecimen Research
Presented by:
Nancy M.P. King, J.D.
Friday, May 13th, 2011
Jack Cram Auditorium, ºÚÁÏÍø±¬³Ô¹Ï, Faculty of Education
3700 McTavish Street
11:30 – 12:00 Registration and a Light Lunch
12:00 Lecture with Discussion to Follow
ABSTRACT: The collection of biospecimens and data
into biorepositories for research purposes is a booming business
worldwide. Relevant technological capacities continue to expand –
the ability to continuously link data with specimens; to extract
DNA and other information from very small amounts of blood and
tissue; to maintain both confidentiality and identifiability of
specimens; and to conduct ever more sophisticated research
involving greater and greater numbers of specimens to answer
questions no one could have previously imagined addressing. When,
as a matter of law, policy, or ethics, specimen providers are
required to consent for the use of blood or tissue in research,
many significant ethical and practical issues remain. This
presentation considers some of those issues, including: the
appropriate scope and limits (if any) of consent to research uses;
privacy, confidentiality, and identifiability; group interests and
harms; and the ethical grounding of research relationships
involving biospecimens (stewardship, biocitizenship, scientific
literacy, and scientific integrity).
BIOGRAPHY: Nancy M. P. King, JD, is Professor,
Social Sciences and Health Policy and Internal Medicine, School of
Medicine and Institute for Regenerative Medicine, and Co-Director
of the Center for Bioethics, Health, and Society and the Master of
Arts in Bioethics Program at Wake Forest University. Professor King
was a member of the Recombinant DNA Advisory Committee of NIH from
1998-2002. In 2002 she was elected a Fellow of the Hastings
Center.
More information and to register: